Our Partners Working Together To Achieve Our Goals Our Partners Working Together ToAchieve Our Goals The Orphan Disease CenterRare Epilepsy Network (REN)Global Genes - Rare Foundation AllianceProbably GeneticCoriell InstitutePatient Airlift Services (PALS)CHAMP1 UKSimons SearchlightRARE-XPatient WorthyCHAMP1 Research Foundation - EuropeRare Revolution MagazineCombined BrainChildren's Hospital of PhiladelphiaAngel Flight NENational Organization for Rare Disorders (NORD)