Our Partners Working Together To Achieve Our Goals Our Partners Working Together ToAchieve Our Goals Angel Flight NEPatient WorthyGlobal Genes - Rare Foundation AllianceProbably GeneticRare Epilepsy Network (REN)RARE-XPatient Airlift Services (PALS)Combined BrainCHAMP1 Research Foundation - EuropeThe Orphan Disease CenterNational Organization for Rare Disorders (NORD)Coriell InstituteCHAMP1 UKRare Revolution MagazineChildren's Hospital of PhiladelphiaSimons Searchlight